Us TOO Loudoun County Support Group Sterling, VA (202) 746-3045

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Resources

Reference Library Sites

US TOO International:  Support groups for cancer patients, survivors and their loved ones:

Prostate Cancer Research Institute (PCRI)A charitable not-for-profit organization whose mission is to improve the quality of men’s lives by supporting research and disseminating information that educates and empowers patients, families and the medical community.

Prostate Cancer FoundationThe leading philanthropic organization funding and accelerating prostate cancer research globally.


MalecareAmerica’s largest volunteer men’s cancer support group and advocacy national nonprofit organization.  Its web site has health information and news in several languages, as well as a listing of its workshops and support groups:

 

www.zerocancer.org:  Zero, formerly the National Prostate Cancer Coalition, is an action group dedicated to ending prostate cancer:

Education & Research Sites

http://www.pubmed.gov:  PubMed, a service of the National Library of Medicine, provides access to over 11 million MEDLINE citations back to the mid-1960's and additional life science journals. PubMed includes links to many sites providing full text articles and other related resources.   (Note: To get full text of an article, visit the Myra mahon Patient Resource Center at Weill Cornell, 1305 York Ave., NY, 2nd floor (646-962-4472).

Google Scholar http://search.sciencemag.org/?q=prostate%20cancer 

Centers of Excellence Hospital Sites

http://www.nccn.org/default.asp:  National Comprehensive Cancer Network:  is an alliance of 20 leading cancer centers. In 1999, NCCN developed a set of prostate cancer guidelines which are available at the site; it also lists clinical trials.

The National Cancer Insitute: at the National Insitutes of Health is a good place for information and statistics about all types of cancer.

UCSF Urology  https://urology.ucsf.edu/

Pharmas, Biotech Manufactures

https://www.foundationmedicine.com/genomic-testing/foundation-one:  Genetics Testing site.​

AMBRY http://www.ambrygen.com/:  Great Genetics Testing site.

Guardant360 vs Tissue | Time to Treatment | Guardant Health

www.guardanthealth.com/time-to-treatment-guardant360-vs-field/

Most tumor genomic tests require tumor tissue that is retrieved from a biopsy specimen. ... Guardant360 is a biopsy‐free, simple blood test for tumor genomic profiling. ... The Guardant360 blood test also provides samples with an adequate level of cell free DNA to test 99.8% of the time.

Clinical Trials

Cancer Clinical Trials-National Cancer InstituteSearch for Clinical Trials close to your location.

ClinicalTrials.gov:  The national Institutes of Health's  provides regularly updated information about federally and privately supported clinical research in humans:

EmergingMed Clinical Trial Navigation Service

https://www.emergingmed.com/  Fill out a short questionnaire to identify clinical trials looking for your specific diagnosis, stage and treatment history from the full national database of cancer trials.

http://cancer.ucsf.edu/about/designation-and-accreditation

The UCSF Helen Diller Family Comprehensive Cancer Center is proud to be designated a comprehensive cancer center by the National Cancer Institute, which is part of the National Institutes of Health.

Foundation Medicine https://www.technologyreview.com/s/426987/foundation-medicine-personalizing-cancer-drugs/

https://app.emergingmed.com/ustoo/home Us TOO Clinical Trial Finder.

Interactive Prostate Cancer Blogs

Prostate Cancer InfolinkProvides the latest news and articles on prostate cancer.

 This online resource for cancer patients, their families, and caregivers is dedicated to delivering accurate information at a time of need: It is sponsored by NexCura, Inc., which is an ebusiness that provides treatment decision support tools:

Us TOO Prostate Cancer - Inspire https://www.inspire.com/groups/us-too-prostate-cancer/

Us TOO prostate cancer support group & discussion community. ... Prostate cancer and intimacy.

http://www.healingwell.com:  Prostate Cancer Resource Center. A good resource for other health issues as well. Includes link to books:

ADVANCED PROSTATE CANCER FORUMS  http://forums.jimjimjimjim.com/

Malecare Online Advanced Cancer Support GroupMalecare Online General Support Group for the Newly Diagnosed and General Information:  These are virtual support groups where visitors can post questions and read responses to inquiries about prostate cancer.

Cancer survivors network - Cancer.Net‎

Adwww.cancer.net/Survivorship‎

Find Information and Support for Dealing with and Surviving Cancer

Coping · Care · Symptoms · Treatment · Patient Education

Prostate Cancer News

Prostate Cancer News                                                                                     

https://www.sciencedaily.com/news/health_medicine/prostate_cancer/.

CURETALKS  http://www.curetalks.com/prostate_cancer: CureTalks is a talk show that features leading medical experts in conversation with a panel of patients about latest treatments under development. 

CancerCare: Cancer, Support Groups, Counseling, Education ...

www.cancercare.org  CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance.

Webinars

Webinars and Videos | ZERO - The End of Prostate Cancer

https://zerocancer.org › Learn › Resources​ 2015-EDU-WEB-Webinars Educational Webinars. ZERO is always working to bring you current information about all aspects of the prostate cancer journey.

Webinars - Live-streaming Urology Videos - UCLA Urology, Los Angeles

urology.ucla.edu › Home › For Patients Urology Webinars: Free live-streaming Webinars: Ask Live Urology Questions, Hear the Latest ... Curing Prostate Cancer With Ultrasound: HIFU Arrives at UCLA.

Prostate Cancer Webinar - Video About Diagnostics and Management ...

www.mrisusa.com/prostate-webinar.php

Prostate Web Seminar ... Role of Combined MRI & MRI-S in Treating Prostate Cancer · MRI-S Case Studies · PSA · Prostatitis · Prostate Enlargement (BPH)

Support Groups

CancerCare: Cancer, Support Groups, Counseling, Education ...

www.cancercare.org/​ CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance.

Interactive Virtual Support Groups

Answer Cancer Foundation  https://www.ancan.org/. 

Helpful Resources

 

CancerCare: Cancer, Support Groups, Counseling, Education ...

www.cancercare.org/ CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance.

CancerBridge  https://www.mycancerbridge.com/​ A cancer-focused navigation service that provides your employees with immediate, one-on-one personalized access to a physician who is an expert in their cancer.

Cancer Support Community  https://www.cancersupportcommunity.org/​ Global network offering quality cancer support to millions of people touched by cancer, available online and at community-based centers and hospitals.

Cancer Commons – 100,000 lives can be saved every year

https://www.cancercommons.org/ Whatever your diagnosis, our expert network will help you identify your best options quickly, clearly, and free of charge. ASK Cancer Commons now.

Prostate Cancer Community | Smart Patients

https://www.smartpatients.com/communities/prostate-cancer The Smart Patients Prostate Cancer community is an online support group for patients and caregivers dealing with prostate cancer. Members share help, advice ...

The Smart Patients Prostate Cancer community is an online support group for patients and caregivers dealing with prostate cancer. Members share help, advice. 

American Urology Asssociation:  http://www.auanet.org/guidelines/early-detection-of-prostate-cancer-(2013-reviewed-and-validity-confirmed-2015).

 

Newsletters

http://www.ustoo.org/Read-the-HotSheet-Newsletter:  US TOO National Site is a good starting place for resources and contacts:  . US TOO International Hot Sheets with the latest prostate cancer news are available online:

http://www.medscape.com/homepage:  Medscape site, now owned by WebMD, is comprehensive site for medical info in general; you can create a homepage focusing on urology issues and get a weekly MedPulse newsletter with latest research and news on topics of interest:

UROTODAY  https://www.urotoday.com/newsletter-archive/archive/listing.html

Medpage Today Newsletters  https://www.medpagetoday.com/search?q=newsletters.

Medscape Newsletter  http://www.medscape.com/resource/prostate.

Financial Assistance

http://freegrantsforwomen.org/:   

We are the largest source of grants for women

Listed here are free grants and financial assistance programs that help women with medication, housing, medical bills, rent, utility bills, child care, education, and mortgage, among others.

http://triagecancer.org/financial?ct=t(Prostatepedia_Weekly_Oct_2010_20_2017)&goal=0_bc8795358a-8d3d74a541-149108785&mc_cid=8d3d74a541&mc_eid=9d011d1138

http://grantsfornativeamericans.org/:   

Native american grants in all 50 states and major cities

Our website provides detailed information on native american grants that could help low income individuals and families [ two parent and single parent ] with grants and scholarships. Assistance is offered free of cost to eligible families who can offer sufficient documentation to prove financial hardship.

Other Prostate Cancer Sites

https://pacificmedicalacls.com/first-aid-for-people-with-cancer.html:

Aside from ensuring that the first aid kit is well stocked, the key to administering first aid to cancer patients is to understand the specialized skills and items needed to manage fear, anxiety, and depression; adverse effects of cancer or chemotherapy; and emergency situations that require cardiopulmonary resuscitation (CPR).

Prostate Health Education Network (PHEN): http://www.prostatehealthed.org/page.php?id=2

Medicare.gov: the official U.S. government site for Medicare

https://www.medicare.gov/ medicare.gov: the official U.S. government site for Medicare.

TRICARE For Life:  https://www.tricare4u.com/wps/portal/tdb/tricare4u/homeAre you new to TRICARE For Life? Select play to view informational video from the Defense Health Agency regarding the TRICARE For Life program.

Veterans Exposed to Agent Orange - Compensation:  

https://www.benefits.va.gov/compensation/claims-postservice-agent_orange.asp

Jul 13, 2017 - Veterans who were exposed to Agent Orange or other herbicides during military service may be eligible for a variety of VA benefits, including ...

 

http://freegrantsforveterans.org/

Find Free grants for veterans in all 50 states and major cities

Our website provides comprehensive details on grants for veterans. These grants are given away for free, and they could help low income veterans with bills, mortgage, rent, housing, college, and medications. Please note that grants are only given for veterans who can prove financial difficulties. Apply for multiple grants to ensure your needs are met. We offer information on the following: (1) grants for rent (2) housing assistance (3) help with bills (4) education grants (5) medical bills grants (6) business grants

​My Prostate Cancer Roadmap  https://www.myprostatecancerroadmap.com/ Good site for Newly Diagnosed.

towerurology.com:  Tower Urology in Los Angeles, are experts in incontinence.

AdMeTech Foundation: A nonprofit organization based in Boston whose mission is to end the prostate cancer crisis:

CancerCare Connect Education Workshops:  Leading experts in oncology provide up-to-date information in one-hour workshops over the telephone or online.


National Comprehensive Cancer NetworkA not-for-profit alliance of 21 of the world's leading cancer centers. Provides guidelines for diagnosis and treatment of prostate cancer.


Prostate Cancer Guides and BooksFree publications from the Prostate Cancer Foundation.


Prostate Cancer Treatment GuideA source of prostate cancer information that is written plainly and organized conveniently into a chart.

Prostate Cancer Record and PSA History Log:

Sexual Health and Intimacy After Prostate Cancer:

Understanding Your Gleason ScoreDr. Jeffrey Albaugh:  What is a Gleason score? How is it determined? How can it help you decide on the right treatment for your prostate cancer?


You Are Not Alone NowProvides comfort to any man diagnosed with prostate cancer, offers thoughtful support to him and his family and helps them to decide how best to deal with the diagnosis.

Diet and Cancer: New Approaches to Ancient Remedies:  Notes for Dr. Richard Rivlin's talk:

http://www.prostatevideos.com:  Dr. Gerald Chodak, who writes a regular column for the monthly US TOO hot sheet, created an educational website that includes more than 60 relatively short videos explaining every aspect of this disease:

http://www.mskcc.org/mskcc/html/11570.cfm: Integrative Medicine at Memorial Sloan-Kettering has put together this web site that has up to date findings about herbs, botanicals and other products:

http://www.nypcancerprevention.org: New York-Presbyterian's on-line Cancer Prevention magazine is a good way to keep abreast of the latest findings concerning all types of cancer: 

http://www.cancer.gov/cancertopics/types/prostate:  National Cancer Institute:

http://www.nlm.nih.gov/medlineplus/:  National Library of Medicine, part of the National Institutes of health is a good source of up-to-date, reliable medical information:

 

http://www.biomedsearch.com/: is a biomedical search engine that contains NIH/PubMed documents, plus a large collection of theses, dissertations, and other publications not found anywhere else for free, making it the most comprehensive free search on the web:

www.hypertext.org:  Bill Dyckes site has broad coverage, is well organized, and easy to understand: 

http://www.phoenix5.org/menumain.html:  Phoenix 5, a non-profit organization started by a prostate cancer survivor, Robert Vaughn Young, provides extensive coverage with lots of user experiences:

http://www.cancer.org/:  American Cancer Society provides info on cancer in general; prostate-specific material is not as thorough as other sites:

http://www.yananow.org:  Yana , support group that is affiliated with Prostate Cancer Foundation of Australia:

http://www.cancerlinksusa.com:  The CancerLinksUSA.com is a noncommercial site founded to provide support and information to cancer patients and their caregivers. CancerLinksUSA also provides links to various forums and newsgroups to allow patients to interact with other patients to provide support and share experiences and resources:

http://jama.ama-assn.org/:  Journal of the American Medical Association; full text articles can be purchased: 

http://urology.jhu.edu/:  The Johns Hopkins Brady Urology Institute has some interesting material:

 

https://www.mskcc.org/cancer-care:  Memorial Sloan-Kettering Cancer Center 's Prostate Nomogram is designed to help physicians and patients decide which treatment approaches will result in the greatest benefit: 

 

http://columbiaurology.org/specialties/holistic_urology:  The website of the Center for Holistic Urology at the Columbia-Presbyterian Medical Center is interesting, particularly with respect to nutrition and supplemental vitamins for prostate cancer:

http://psa-rising.com/:  PSA Rising is a patient-centered, evidence-based prostate cancer news sources and web portal. Since 1997 our mission has been to deliver news and information about medical, scientific and social aspects of prostate cancer survival:

http://nccam.nih.gov/:  National Center for Complementary and Alternative Medicine is part of the National Institute of Health and focuses on rigorous study of complementary and alternative medicine:

http://www.newyorkprostate.com :  New York State Prostate Cancer Coalition is a state-wide prostate cancer educational resource:

http://www.cpcn.org/:  Canadian Prostate Cancer Network is active in creating and supporting PCa support groups. Their site has lots of useful information and is a good reference to groups in Canada:

www.cancercare.org/get_help/help_by_diagnosis/diagnosis.php?diagnosis=prostate: web site of Cancer Care, which provides support services, including counseling, to cancer victims, their families and others affected by cancer . Information specific to prostate cancer is under Cancer Care's toll-free number is 1-800-813-HOP:

http://www.cornellphysicians.com/prc/: The home of the Weill Cornell Myra Mahone Patient Resource Center provides links to important sources of cancer and health information. The librarian can obtain for patients full text articles of material that is in the college's medical library:

DrugDigest.org: provides information about drugs and interactions among drugs and herbals:

LabTestsOnline.org: provides explanations about the lab tests for the consumer:

http://www.seniorhomes.com/p/prostate-cancer/:  Senior Homes provides all kinds of information about senior issues, including prostate cancer:

www.aboutmen.caAbout Men CA:

www.cancer.org: American Cancer Society:
  American Cancer Society prescription medication cost support :  ACS may be able to help you find financial support for travel, lodging (i.e. on the mainland,) prescription medicines, and more.

http://prostatecanceralliance.orgGlobal Prostate Cancer Alliance:

www.naspcc.orgNational Alliance of State Prostate Cancer Coalitions:


www.cancer.govNational Cancer Institute:

www.prostatecancer.ca:  Prostate Cancer Canada:

 

http://www.lua.co.uk/:  Dr. Mark Emberton's web site.

www.pcf.orgProstate Cancer Foundation:  Prevention begins with knowledge. Visit PCF for prostate cancer info. 23+ Years Of Experience. Effective Treatment. Services: What is Prostate Cancer, Help Fund a Cure, Cancer Research News, Prostate Cancer FAQs, Managing Prostate Cancer, Early Detection/Screening, Find a Doctor.

http://www.uchospitals.edu/physicians/walter-stadler.html:

http://cancer.northwestern.edu/aboutus/leadership/hussain.cfm:


www.pcainternational.orgProstate Cancer International:  

www.prostate-cancer.comProstate Cancer Treatment Guide:

https://www.pleuralmesothelioma.com/cancer/understanding-cancer.php:  This organization provides free resources and work with individuals and their families to help them find local doctors, treatment centers and support groups. There is a  good general cancer guide on this website. 


www.prostatehealthed.orgProstate Health Education Network:

www.prostatenet.org:

http://pathology.jhu.edu/MolecularDiagnostics/files/ARV7.pdf :  John Hopkins test for Xtandi and Zityga Request Form.

 

www.WebMd.com:  The Prostate Net:  WebMD:


www.womenagainstprostatecancer.orgWomen Against Prostate Cancer: 

https://www.carcinoid.org/for-patients/ The Carcinoid Cancer Foundation.

Other Cancer Sites

https://www.asbestos.net/mesothelioma/:   

Mesothelioma  A Type of Cancer Caused by Asbestos Exposure

Mesothelioma is a deadly, aggressive cancer caused by asbestos exposure. Greedy companies hid the dangerous side effects of asbestos from the public. Now, thousands die each year, and survivors must undergo expensive medical treatments. If you have mesothelioma, an experienced lawyer may help you seek justice and get the financial compensation you deserve.

https://www.mesotheliomahelpnow.com/mesothelioma/:  Get Mesothelioma Help Now, Access Free Resources, Support Groups & More! Get Financial Assistance. Free Resources & Services. Top Mesothelioma Lawyers. Find Mesothelioma Doctors. Live Chat Available. Avoid the Courtroom. No Out of Pocket Fees.

https://www.asbestos.com/cancer/prostate/ The Mesothelioma Center offers the most comprehensive and current information on asbestos exposure, mesothelioma and prostate cancer.

https://www.mesotheliomalawyercenter.org/:

For over 20 years we’ve been helping families like yours connect with leading mesothelioma lawyers. There are many law firms that handle mesothelioma and asbestos cases. Choosing the right law firm for your family can be overwhelming. We clear through the confusion and help you connect with only the top lawyers nearest to you.

https://mesothelioma.net/:   Mesothelioma.net offers a plethora of free information and resources for those afflicted with mesothelioma.

www.mesotheliomahub.com/:   ”Mesothelioma”   

This rare cancer is caused by exposure to asbestos and can take years to develop.  Although the prognosis for mesothelioma has historically been poor, new treatment options offer patients renewed hope. Mesothelioma Hub connects you to treatment information, legal advice, resources for veterans, and the country’s top mesothelioma specialists.

Other Sites

https://grandfolk.com/:   Grandfolk is focused on improving the lives of seniors through guidance during key transitions with lifestyle, products, and services.  Grandfolk provides guidance on senior lifestyle, products, and services.